It all started with the fourth piece in our confusion-clearing and myth-busting series about the NDIS: ‘Is it true that self management means hiring all my workers?’ We received great responses to this piece, and asked one commenter, Ellen Fraser-Barbour, to write a guest blog post based on her thoughts and concerns around the new ways people with disability can hire their support workers.

We published her piece ‘Yes we want to hire workers more easily. But let’s also talk safeguards and support’, which then inspired us to seek responses from three new kinds of organisations: Better Caring, Hireup and MySupports.

To recap, the three issues Ellen raised in her blog post are:

Issue 1: How do we show commitment to building trust between people with a disability, families, workers and organisations?

Issue 2: What avenues are there for disclosing issues safely and confidentially if things go wrong between individuals and their workers?

Issue 3: Who is responsible for offering professional development to individuals, their families or their workers as we navigate this new NDIS world?

Why these three organisations? Because they represent the different kinds of options and because they are all interested in people taking greater control of their services and supports and to assisting more people self manage. There are other organisations that provide similar services to those listed above, and we recommend doing your own research before deciding on who can best support you in hiring support staff.

Before you read their responses to Ellen’s issues it’s important to know some of the differences between them. It provides an important framework for their responses.

Hireup is actually an employer. They just help people connect with each other via an online platform as opposed to a physical office.

Better Caring is a an online platform that connects people with disability to self employed people (independent contractors). This means their relationship to people on their platform is a bit different to Hireup.

Lastly, we invited MySupports to respond. They are also an employer. We invited them because of their commitment to employing people with disabilities and family carers, and because of their interest in promoting and developing self directed supports.

We thank Ellen, particularly, for her contribution to this important and growing conversation. We’ve edited the organisations’ responses for length and cohesion, but we’ll provide links to responses these organisations post to their own pages over the coming weeks. As always, if you’d like to add your thoughts, experiences and questions to the conversation, you can leave a comment below or on our Facebook page, or send us an email.

We’ll now hand over to Better Caring, Hireup and My Supports, whose responses are on the following pages.

Better Caring – next page

Hireup – page 3

My Supports – page 4

Well we got some great responses and comments and asked one commentator if she would like to write a Guest Blog to keep the conversation going. Thank you Ellen Fraser-Barbour*! We think you have raised some excellent points to consider around the recruitment of support workers.

We have reached out, and are hoping that our next piece is a response from some organisations discussed in our original piece. That way we can get a really good conversation going.

Over to you, Ellen.

Photo of Ellen Fraser-Barbour

The NDIS market has seen a rise in the range of services offered, from large traditional provider models to smaller in-community neighbourhood team and online connector models. In my experience the NDIS is opening doors to new exciting opportunities and this should be encouraged.  In my experience online models offer simplicity, flexibility, ease of booking, convenience and affordability. In-community support workers working within an agency or team, can offer a degree of support and “back-up” when planning and managing all the ins and outs of what this important work entails.

I have been wondering, however, about how these new types of self management models safeguard. Yes they, alongside all service providers, have policies in place to ensure safety, security and support for individuals, families and workers and these policies are vitally important but I can think of many examples where traditional large agencies are up to the hilt in policy but do necessarily invest in developing an active organisational culture or practice that truly embraces a human rights approach at base level. Policies are there, but putting this into practice seems to be easier said, than done. This has been highlighted in recent inquiries into abuse in disability services.

If questions of accountability and complaints processes were difficult to ask within large traditional service systems prior to the NDIS, it is now an urgent consideration with the NDIS. Bureaucracy is still there and it is still exhausting and ‘messy’ and complex for people with disabilities and their families to navigate. The only difference is that ideally, people with a disability now decide who is worth the stress and who isn’t.

In my experience, the issues of safeguarding are not black and white, like they might seem in policies. I can think of many examples of risky scenarios and ethical dilemmas people find themselves in every day. Life is complicated and there may be times when individuals or families are under immense stress. These stresses vary over time and place. Some situations of crisis are very apparent but others seem more hidden and are not identified until things have already escalated and workers might need to be able to respond in a moment to these situations. Adversity and crisis can take over and informal support networks may disintegrate. In these circumstances, support workers and professionals may be the primary point of contact for support and a vital link. In reality, however, workers may only be employed for short times, may not be not highly skilled and are working for a basic wage with a high turn over rate. There may be times when there’s a crisis beyond the scope of what that worker can deal with. I think there are times when the worker may well decide it’s “too hard” and leave, or alternatively, individuals may question the actions of workers and may well decide to sack. One hears about families who have been through a whole range of workers lasting a very short time. I think this usually suggests that the support networks fail both workers and individuals.

I think this is where Support-Coordinators or case-managers can be useful. If they’re good at their job, they would be “checking in” to see how things are going with individuals and with their support ‘team’. There may also be times when conflicts happen (because we’re human) and NDIS goals slip to the bottom of our priority list. Issues need to be addressed rapidly, calmly and sensitively and this is aided when there is an identified person available and accessible within that person’s network. Support Coordinators can debrief with families and assist with transitioning to new supports or linking to other disability or mainstream services.

At base level, questions need to be asked about safeguards when self-managing support workers. I admit to feeling out of my depth in even trying to pinpoint some specific questions and I worry I’m opening a can of worms, but I will put myself out on a limb here in the hope that some conversation is generated.

Here are a handful of questions I think organisations or self-managing employers could consider.

How do we show commitment to building trust between people with a disability, families, workers and organisations?

Without trust, it is very difficult for anyone to feel safe disclosing concerns. We are human and what is conflicting for one person, may not be for others. I think this is particularly relevant if connecting workers & individuals online without face to face meetings or a “middle man”. Expectations of stakeholders aren’t always made clear.

What avenues are there for disclosing issues safely and confidentially if things go wrong between individuals and their workers?

If support workers are not part of an organisation who do individuals and/or workers negotiate and receive support from, in times of conflict and stress? Being the direct employer is appealing when things are going well. With participants “driving the bus” so to speak, it means issues should be discussed with them first (as it should be). But what happens when there is a crisis and the person with the disability and/or their workers need more support and resources?

In my experience and from what I have heard of others, even in large organisations with strict hierarchical structures, support for individuals and workers is often lacking in times of crisis. With more workers without any back up or organisation, how are stakeholders protected when approaching sensitive concerns and possible conflicts?

Who is responsible for offering professional development to individuals, their families or their workers as we navigate this new NDIS world?

How is training is offered and how frequent is this training? In particular how do self-managed employers and independent employees access professional development to keep abreast development in the field and up to date best practice? How do we standardise training across sectors in light of the NDIS?  In circumstances where agencies are involved, how much time do service providers really have and how often do they touch base with both individuals and workers and offer professional development, training, debriefing or support?

Of course, these are just a handful of questions one could ask – the issues are complex and I don’t think there are silver bullet solutions or quick answers in terms of how we navigate safeguards and dignity of risk. I am, however, an optimist and a believer in generating conversations about where the gaps are.  These conversations need to represent diversity in order to be truly productive. I hope that there are opportunities for the voices of many to be heard.

I also hope that in writing this piece, I might encourage people to share personal experiences and ideas about how we engage, build bridges and offer the best quality supports and continue to work towards progress.

*Disclaimer:   The author wishes to make it clear that this writing does NOT represent the views of organisations she works for – past or present and is merely her own perspective.

NOTE; The majority of concerns are not necessarily about abuse, or violence and are not severe in nature- but there are times when they are and in these circumstances professionals at all levels of services are mandated to formally report any incidences or suspicions of abuse, violence or neglect to their respective statutory bodies such as the Child Abuse Report line (in SA).

Ellen Fraser-Barbour

Image of a cherub statue playing a flute

We have been writing about the different ways you can manage your NDIS funding.

1. You can have the National Disability Insurance Agency (NDIA or Agency) do it

2. You can use a Registered Plan Manager

3. You can Self Manage

4. You can mix!

These are still choices, regardless of what happens in planning meetings, and this is why we are producing this information. It is always important to ask, and to know what is possible!

In this piece I begin an exploration of Self Management.

– Lauren Hislop

A personal quest: I admit to being hesitant about self management

Do you feel the same way? Well come explore with me …..

As a woman with a disability, I have felt disempowered by services in the past. For example, I require some personal assistance to prepare for the day. I have previously asked agencies if I could meet the carers before they come to assist me. This was never OK’d.  So, my experience has typically been that 10 minutes after I initially meet a carer, I have to strip naked in front of them.   I find this extremely dehumanising and disrespectful. It leaves me in an extremely vulnerable state.  Many people with disabilities have and still are experiencing this. We have been too afraid to voice our complaints as services could be reduced.

However, we are at a time when this situation could alter dramatically.

In a previous post I wrote how I moved from my NDIS plan being managed by the NDIA (Agency managed or the Agency) to choosing a Plan Manager to help me manage my funds. My life has improved considerably.

I would like to explore Self Management for the future. I know people who are self managing. Flexibility, choice and control seem to be some of the positives of self-managing your NDIS budget.

But I must admit to feeling very hesitant about it. My first thought was “I don’t think I have what it takes to self manage”.

Is this true?

I’ve decided to figure out the answers to some of my questions and hesitations.

This piece explores some of the real benefits people say they get through self managing.

It also looks at whether you can get help to do it.

Along with my research, I interviewed an NDIS participant, Naomi, and the parent of a NDIS participant, Linda, to gain some of their perspectives of self-managing.

She who pays the piper calls the tune

If you chose the Agency or a Plan manager to help manage your funds, you do have a say, and to different degrees (which is why I chose Plan Management).  However, you don’t have direct access to the funds allocated in your plan.

Direct access doesn’t mean you can just go spend money on whatever you want. You are still accountable. Like everyone, you have to spend the money to achieve what is says in your plan. You have to keep records and be accountable to the NDIA. You may be audited.

But what peaked my interest was something Linda said. She likens self-managing to the saying, ‘[s]he who pays the piper calls the tune’. This means the person managing the money gets to determine how it’s spent. With self-management, providers are completely directly accountable to you.

Naomi claims that, “For me personally, self-managing allows me to control the various supports I need.’

Naomi and Linda believe they have more flexibility over their supports than they would if they had the NDIA manage their budget.

Naomi claimed that, “It allows me more flexibility in choosing what supports are important and more choice of who will provide them and how they will be provided’’.

Everyone stated it gives them a clearer understanding of the amount of money they have.

More choice in support

I was curious about what this meant. I understood the NDIS meant that I could choose any provider I wanted, regardless of how my funds are managed.

With self-management you can get support from a provider of your choosing, whether or not they are registered with the NDIA . If your funds are managed by the NDIA, you can only use registered providers.

In my previous piece on Plan Management I explained how I used a small business person to offer me training and mentoring to find work. She is not registered as an NDIS provider, but is someone who has helped me achieve my NDIS goal in Finding Work.

Linda’s son wants to live independently with flatmates his own age. She wants to take a supported living approach that is tailored to her sons needs. She claims she doesn’t want him in a group home where he wouldn’t have any control over his life. Traditional service providers and/or the agencies may state that people with disabilities may have to accept living in group homes.  However,  with self-management Linda’s sons’ funding can be used in a creative way to engage a person with expertise in supported living to help Linda and her son go through the steps necessary to make this work.

You might know the therapist you want to use, for example, but they aren’t registered with the NDIA.

Both say you can get more for your money. Self managing means that you can search for the best price more easily, always bearing in mind quality.  Having said that, it also means that providers don’t need to stick to the price guide, so you need to think about what is valuable to you.

You are in control of how your plan is delivered.  If you self-manage you don’t have to have a registered provider offering you services. This includes mainstream providers. This aspect of self-management could be very freeing for participants.

Benefits in employing support workers

I am learning that there are a number of different ways you can engage support workers:

• Make a agreement with a service provider to use their workers or employ workers you find
• Engage an independent contractor
• Use an online employer of support workers
• Directly employ people yourself

There are new kinds of online services which help you engage contractors or employees.

When you are self managing, people said they can more easily do any of these options.

Self management especially makes it easier for people who want to employ their own workers.

Everyone stated that self-management has given them the opportunity to recruit and chose their own support workers. It has helped them move from feeling like a client (with associated feelings of burden and being powerless) to being an employer (empowered).

Naomi loves being in control of who she employs. Self-management has allowed Naomi to seek out and employ workers suited to her requirements. She stated that, with self-management, she has the flexibility to have workers whenever suits her (and within the limits of her funding).

There is a consistent theme about this with people stating variations of “ My staff are committed to my vision and goals and they understand what a good life is to me.  I no longer have to say to my friends that I can’t stay because I have to be put to bed at 8pm—I am now in charge of my life. It is really empowering to know that I am in full control of my life and I make the decisions.”

Do I have to do all this on my own?

Linda claims that, ironically,  ‘By taking on the responsibility and self-managing the funds I could have more flexibility and importantly delegate more tasks to others’.

Linda states that sometimes self-management is conveyed as a person having to do it all by themselves. However, a person can decide what they would like to take on and what they would like help with by someone else.

‘I am terrible with numbers. I can’t read a profit and loss sheet  and really all I want to know is if the budget is on track- if we are over spending or not.  So I have a bookkeeper to assist me to understand and keep track of the budget. He also assists me with the payroll for support workers’.

In fact,  Linda also engages a key worker to lead her team of workers. She pays that person a little bit more and they have been able to take over many admin duties such as rostering.

Linda asserted that people can attend their NDIS planning meeting and say they would like to self-manage but they need assistance, especially if they have never done it before.

There are others who could assist as well

• Support Coordinator – you may receive hours in your NDIS plan for help to implement it. This will be from someone called a Supports Co-ordinator.
• A Registered Plan Manager – they may have tools that can assist you. You find a plan manager through the Provider list on the NDIS website and increasingly through other online service provider registers.
• Recruitment agencies
• A worker dedicated to making social or community connections
• Local Area Coordinators
• Peer support
• Family, friends and others in your networks

You can request to self-manage all or some of the support budgets in your NDIS Plan. You may also choose to self-manage one part of your plan to get started and learn how to do it.

Get in touch with us if you want to explore how self management could work for you or people you support.

Here are some Plain and Easy English information about self management which links to good information about employing workers.

And here as well.

Here is another good website especially about employing support workers.

Stay tuned to learn more of the details of how this works in your NDIS plan. I know I’ve got more questions!

– Lauren Hislop

They say there are 4 essential steps

1. Learn if you might be able to access the NDIS.
2. Think about your life now, your current informal and formal supports, and what is working and what might need to change.
3. Identify your strengths, interests, challenges and consider your goals or what you might want to achieve.
4. Write these things down and collect any reports, assessments or information you might find helpful for when the NDIS comes to you.

They have created a video and transcript about this, and have also confirmed elsewhere that thinking about your goals in your first plan is important.

In our work with people, however, we’ve discovered it is not always easy to do steps 2 and 3 and turn them into goals!

“Create a goal! Go on – it’s easy!”

This statement opens up an enthusiastic dialogue about how awesome goals are and why everyone going into the NDIS should go into their planning meetings equipped with goals that will change their lives for the better.

This exuberance is often fuelled by “write down your life story and everything will be hunky dory!”.  And besides, if you’ve been around disability services for long enough, you may have already told your life story to more people than you care to recall.

So. How do you turn a vague idea into a goal without opening up every corner of your life to yet another person you don’t know? Or – what is a straightforward resource that will help you to articulate the foundations of an actionable goal?

Introducing Talia

Talia, a fictional 25-year-old woman who lives with muscular dystrophy, has agreed to share her process with us. Mostly because we created her, but also because she cares about what happens to people going into the NDIS. She also said she’s happy to periodically cut our conversation off mid-stream to highlight the practical questions involved in creating a goal. So obliging!

Talia lives at home with her 18-year-old brother who is doing his final ever exams, and her Mum and Dad.

When we asked her about her goals, she paused for a moment before saying “I wish I knew. But how can I think about that when my support workers are never on time in the morning to help me get out of bed? It seems like it’s every second day that Mum has to help me instead. I’m 25 years old; I shouldn’t be this dependent on my Mum. She’s great – but yeah.”

Well these kinds of ideas are really helpful for thinking about a goal!

• “What is missing from your life?”

In Talia’s case, she is missing reliable support staff. As a result of this, she’s also missing out on having independence from her mother.

Throughout this piece, also bear in mind that these steps can be repeated for as many life areas as you deem important.

If you are looking for some help with what life areas you could think about, the NDIS Grassroots Discussion files also has an extensive list of resources, including pieces on life domains such as personal care, community inclusion, social/community support and employment support; as do WA’s Individualised Services (WAiS).

• “What would you like to change?”

Without going all Louise Hay on you, the answers to “What is missing?” need to be flipped to the positive. This is because goals literally can’t be created from what we *don’t* want – only from what we do want.

During this part of our conversation, Talia worked out that she wants reliable support staff and independence not only from her mother, but also from her family in general, who all provide her with a lot of support. And, although her family are close-knit, she just wanted the opportunity to be a daughter and sister instead.

These are the kinds of statements that can be worked with until they become less of a “wish list” and more of a “goal statement/s.” (Pardon the jargon!)

Talia had some difficulty with this next stage because, up until the NDIS, she’d had no choice but to become resigned to the status quo. How do you turn such experience and discontent into a goal statement?

• “What is stopping the missing things from happening?”

Talia said that the employees of her service provider were stopping her from receiving adequate personal care support, which was having a negative flow-on effect to her having independence from her Mum and family.

This conversation lead her nicely into the final step:

• “What would make a difference?”

Talia was stoked when it dawned on her that, with the NDIS, she could change service providers – or indeed, manage her own funds and hire her own support staff. She could even consider building her own team as a solution. She decided to ask for some mentoring assistance to learn how to properly manage and supervise support workers. And she wanted to learn from someone who was experienced in managing their own staff. She also decided to ask for a experienced person to review and create a recruitment process.

Her goal statement became:

“I want to live my life with maximum freedom, choice and enjoyment. An important part of this is having more reliable staff. I would like as little staff turn over as possible. I would like staff to turn up when I expect them to.”

So that was the beginning of Talia’s process.

Other people come at goal-setting from different angles; some are clearer on what they do want, which means they don’t have to spend as much (if any) time on Step 1. If you know what you want, you would just start from Step 3 – “What is stopping the missing things from happening?”.

And that, in a nutshell, is how to turn ideas into a goal.

To check out more resources about becoming #NDISReady as well as support for families and carers, have a browse of the NDIS Ready page (which has the nuts and bolts of what the NDIS provides for people with disability, families and carers).

Jo had to go back in time to a time and an activity that she remembered gave Emma joy. She experimented and bought a shredder. Emma now has a business – Master Shredder - with 4 business clients including a credit union and solictors’ offices. She can now see a reason to communicate and is wanting to go out on her own and with friends.

a group brainstorms with a person with disability

Lyne Mear is a consultant in Human Resources, Industrial Relations and Employees Relations. Her focus is creating work places that are self-generating, solution oriented and enjoyable.

One of the questions I am often asked by people who really want to be front and centre of their supports is

“How can I get more of the good stuff and less of the big service tasks like managing people and doing rosters and paperwork?”

Many families also ask me “How do I get support workers to see what I see, to think ahead and to really do what’s needed?”

I am very pleased to share some of my experience in methods and strategies that will help you develop a positive, flexible and engaged team culture.

Paradoxically I have found that the more people are asked to report and be accountable up a line of management, the less they see things and really take responsibility. The only way to do this is to have practice in taking the responsibility, to really know ‘the buck stops with me on this issue’.

A self managing team

One of the solutions I have worked with people on, is to set up a self managing team. This is a team of workers operating in a manner that requires little top down management. There is still the need for strong governance and oversight, and connection with people, but less of the stuff that takes you away from core business in running your life and your supports.

Self managing teams work best where there are teams of small numbers that are committed to an outcome that is ‘greater’ than the individuals’ self-interest.   Teams working in social welfare, social conscience areas are ideally suited to a self-managed team system.

This idea started many years ago when I was working as a manager of a start-up disability service whose aim was to provide support for independent living for people with disabilities. I was asked to come up with a service provision model for a woman with acquired brain injury from a horrific motor vehicle accident. I needed to find a way of providing support 24/7 that was affordable and also encompassed the principals that my organisation had committed to.  This woman’s parents had the view that she needed to live independently in her own home as an adult. One of the founding principles was that people have the right to live and develop freely.  I believe very strongly in the human right to develop and grow in our own journey.  I still believe this today.

We managed both these things by setting up a self-reliant and self-organising team.  This structure held the principals of self-determination; encouraged the team to self-determine and was the most economical.  Little outlay is involved in the administration and coordination of the arrangement and the team and the person being supported have the opportunity to learn and grow in the arrangement.

That structure has been in operation now for 20 odd years and has been an amazing learning experience for me as well as all those who have been involved in the journey. I am still involved with this woman and her family. For the woman I believe it has provided the best opportunity to live a real life that could have been provided.

I am a consultant in human resources, industrial relations and employees relations, working in some pretty big organisations, and I take these principles wherever I go. I have also taken these principles to work with other families.

The key components

The components of a self managing team are:

1. communication – things must be discussed;
2. openness – things must be discussed;
3. willingess to listen and understand other points of view – things must be discussed;
4. tolerance – other viewpoints need to be allowed to be and these must be discussed;
5. clear vision – an understanding of what is desired must be obvious and understood by all;
6. collaboration – the whole concept is based on the premise of working together;
7. flexibility – there are many ways to achieve the vision. The joy and creativity of working in such a team and to experience the differing ways is amazing;
8. diversity – adds enormously to the creativity of the arrangement;
9. and a sense of purpose – comes back to the vision.

The first steps

Setting-up the arrangement is the biggest and most important piece of work.

The most important parts of the set-up are:

1. engaging and enrolling the team in a clear vision;
2. developing really clear boundaries and expectations within which they will operate;
3. being able to let go but maintain those boundaries
4. developing the systems to monitor;
5. and working with people to move from having things set out for them, to taking responsibility. This is because mostly people are not used to being able to self-manage and being held accountable for the consequences of their actions. Most people are used to reporting to supervisors.

The benefits

A team that is self managing well can do things like take responsibility for their rostering, communication and self-organise amongst themselves and develop a common purpose. They may be delegated authority around the day-to-day aspects of the person’s life and learn to think forward and dream into the person’s life, and organise to achieve those things with the person.

The benefits are that people are more able to enjoy their life or enjoy their family role with the person rather than being the ‘manager’ all the time.

I’m looking forward to sharing more strategies with you.

Want to hear more from Lyne? Click here to join our online session on February 26th 2015.

A man with friends and support workers

Our previous blog on this issue started ‘at the end’ or on tips to get clear on the purpose of paid support. We recommended this as a first step in successful recruitment. For starters, working out purpose can then really help to nail the characteristics you are looking for in people. Once you know the kind of people you are looking for, then it is far easier to figure out where to look for them. After that, you can think about the best methods to reach those people.

Put together, this is a 4 step process of WHAT (purpose) WHO (characteristics), WHERE and HOW (methods to recruit)

So in this piece we will focus on Characteristics. That is, being clear about WHO it is you are looking for.

Start by thinking about the importance to you of any, or all of these categories below.

What makes the person tick – personal qualities, values and vision

Many people say this is the most important thing to think through. This is about the kind of person you are looking for. It is always better when the person shares your vision. So what are your values and vision?

Skills & attributes

These are abilities that show the person can apply knowledge in a practical way to get something done. This could include work skills they have learned elsewhere that they can use in this job. These might be things such as leadership, communication, problem solving, initiative & enterprise, team work, planning & organising.

Technical and professional skills

What do you hope they come with?

Do professional skills and qualifications matter to the role?

What training do you want them to undertake?

Shared interests and hobbies

Depending on the purpose of the role, shared interest might be a definite pre-requisite. No point wanting to get involved in your local indie music scene, for example, and not seeking someone who is going to lap that up and know what to do and how to be in that context.

Even if the purpose of the role is not as specific as this, looking for commonality of interest makes life easier. Liking the people who support you is very important.

Click here to read how Carolyn Campbell-McLean creates her dream team.

 Matching purpose and characteristics in a (real life) example

Robbie is 27 and about to move into his own apartment in the city for the first time. The apartment is being rented from an extended family member who wanted to help by offering this opportunity. The vision is for Robbie to have a housemate. The apartment has lots of great qualities and some down sides. For example, while it is two bedroom it is quite small. Robbie and his immediate family decided that they couldn’t let the opportunity go, but they are worried about whether living with someone will be sustainable. This is also because while much of what support Robbie needs is known, a lot is also to be discovered. Robbie will have some additional paid support workers at different times, but the housemate role is really crucial.

Robbie is a conscientious man who likes to please people. He is a gentleman. He has an incredible memory for people, places, events and television shows. He also loves classical music, old movies, walking, trains and boats (especially old ones). He works, attends a day program and also volunteers. He can feel quite anxious at times, although he doesn’t want to be, and benefits from patience, empathy, people who see his potential beyond this and provide guidance in times when he is struggling to see past the anxiety.

Robbie’s support team decided to create a 6 month paid live-in role. The purpose of the role is to

• Help Robbie adjust and provide companionship – enjoying time together and looking out for each other
• Create an inviting home – joining with Robbie to create a pleasant, and comfortable home together, sharing meals, thinking about ensuring that Robbie’s day-to-day home life is prepared and planned for with tasks such as food and shopping and ensuring that the home is well cared for
• Provide mentoring in some areas of home life
• Build understanding of the longer term support structure – join with his family and support crew understand what kind of support Robbie needs and when across the week. In the longer term, when might a housemate have a role, when family and friends and when might paid support workers have a role?
• Building understanding of the future housemate role – join with his family and support crew understand what a longer term (subsidised) housemate role might look like. Contribute to answer this question: ‘how will it work best for a housemate and Robbie ongoing?’

What do you think are the values, qualities, skills and shared interests needed?

What kind of person would be good in this role? Try and visualise this person.

Now you can start to think about WHERE you might find such a person and what methods you might use to attract them (HOW).

Want to learn more? Click here to join our next online session on December 9th to learn successful recruitment strategies from people in the know!

Click here to hear what a participant has said about our sessions.

Photo of Carolyn Campbell McLean

Carolyn Campbell-McLean is  Senior Facilitator with My Choice Matters, NSW. For 13 years she has used the Attendant Care Program and has self-managed her support for 6 years. This involves managing a team of 7 people who provide her and her partner with daily support. Carolyn believes she has really honed her skills in choosing appropriate people.

Don’t miss her 8 Hot Tips on creating and keeping your dream team!

Download Word version of There is no ‘I’ in team

Download the PDF version of There is no ‘I’ in team

Brightly coloured flowers

Lucy and her family have been very thoughtful in creating a role at her local florist. In this article we share the very practical steps they took.

Download the word version of Engineering the ordinary

Download the PDF version of Engineering the ordinary

One of the goals of InCharge is to grow what I have called an ‘independent ally role’.

We often hear the word ‘ally’ when talking about nations but I’m more interested in its everyday feeling or use.  An Ally is a person who stands with us, who is beside us during a big task or effort.

The need for this role has been brewing in me for many years through my family experience and through observing those individuals and families ‘doing it themselves’ as they self-direct their services and those doing it in conjunction with small, helpful, user-governed organisations and partnerships. I have seen how many people are carrying out wonderful visions for their lives but how difficult this is to sustain over time. In my work in services I have experienced how difficult it is to really drill down on the things that matter to get sustained results – things that matter like friendships, genuine community inclusion, work and moving into a home of your own.

I’ve been engaged for some-time in an ally role as part of a wonderful partnership with Supported Living Network. I spoke about this role and why it works at a recent event about the National Disability Insurance Scheme.

Check out some other fine examples in Australia and internationally.

HomesWest in Brisbane.

Belonging Matters in Victoria.

Deohaeko Support Network in Ontario.

The Circles Initiative in South Australia.

It’s a role that allows people to get on with the job of living their lives, imagining possibilities for themselves, setting directions and vision, but it is also one that can take on a lot of the ‘doing work’ that this entails. It’s perhaps the difference between being both the race car driver and the pit stop team. Many people appear to be both. An Ally can be a key player in a pit-stop team. They might even build a team.

The role takes up the gaps with imagining, thinking and doing which people with disability and their families naturally experience. And they experience it for no other reason than life can be crazy-busy, or because sometimes you simply have to focus on other people or things.

It is also an independent role, by which I mean that it is not owned by government or a non-government service provider, but is completely accountable to people themselves.

At InCharge our goal is to expand this role and make it possible for more people to find and develop their own Ally.

We’ll be showing how this role works in action. Start by checking-out our Ally Project.

Tell us what you think of this idea.